…palliative and hospice care for children are slowly developing outside of the US and UK and in resource-limited settings. As they develop, it’s critical we understand from the communities experiencing and surviving the death of a child what death means to them, how dying enters their lives, how the story of death and dying is told, who they need to be in the dying process, what surviving well includes, and what the good death looks like.
Tag Archives: children’s hospice
for Kamo
Someone said to me this week “sometimes abandoning your child is the greatest act of love,” about a child named Kamo, who was neglected and then abandoned six years ago and just returned to the mother who left him, right as he nears the end of his life. It’s a notion I’ve wondered on sinceContinueContinue reading “for Kamo”
That is Something
I have witnessed suffering. I have seen horrible things. I have watched indescribable pain. I turned around; there two babies lay next to one another on the bed, silenced by pain, save for slight mewing. Their bandages were removed and I glanced twice, three times, four before I could comprehend what was missing: their tinyContinueContinue reading “That is Something”